Bowen Parr’s Journey: A Family’s Experience Living with Fragile X

bowensfxtherapeuti
Mar 3
1 min read

A moving and insightful story by Patient Voice on Bowen Parr and his family's journey in discovering, adapting to and living with Fragile X Syndrome, and the work towards a cure for Fragile X.

https://www.patientvoice.io/for-bowen-fragile-x-diagnosis-propels-family-into-advocacy-and-drug-discovery

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