Mar 31 min read
Bowen Parr’s Journey: A Family’s Experience Living with Fragile X
A moving and insightful story by Patient Voice on Bowen Parr and his family's journey in discovering, adapting to and living with Fragile X Syndrome, and the work towards a cure for Fragile X. https://www.patientvoice.io/for-bowen-fragile-x-diagnosis-propels-family-into-advocacy-and-drug-discovery